Patient and public involvement in research is about research being carried out ‘with’ or ‘by’ members of the public rather than ‘to’, ‘about’ or ‘for’ them.

This is what Keele University School of Medicine say about their PPIE activity:

Patients and the public are at the heart of everything we do in the Keele Patient and Public Involvement and Engagement group.  We want to give people a chance to have a say in their own care and treatment and how much they want to be involved in the decisions.  By getting involved you can give us a better chance of understanding priorities and concerns, and by working together we can develop guidance and assist others from these recommendations.

We have over 130 lay members sitting on our Research User Group (RUG), who help us to develop our research questions, design our research, and provide invaluable advice on how we can implement our research into practice. Being a member of the RUG provides an opportunity to:

• Provide advice on research design
• Read and giving feedback on research material (e.g. questionnaires, letters to patients, consent forms.)
• Comment on research proposals
• Become a member of a project steering committee
• Be a co-applicants on grant submissions
• If you are interested in getting involved or would like to find out more please see:

Get involved in our research (PPIE) – Keele University